It was so amazing to read your story and to look over the foundation website for craniosynostosis. My twin boys were born September 19, 2007 and my first born was immediately diagnosed with the condition. At four months of age he underwent the reconstructive surgery. It was one of the most difficult times of our lives. Our other little blessing was born with a normal head. He was in the hospital for 5 days and came home helmet free and looking wonderful. We had never heard about this condition until I was in the recovery room after giving birth to my twins an holding my little Brody. A Doctor assured me that everything would be okay, but that he would have to have a major surgery. Brody is now a thriving 9 month old doing amazing things. We feel blessed to have had the best Doctors here in St. Louis that took such great care of him. Thank you for sharing your inspiring story. Danna Anderson

What a sweetheart! Your family is all the stronger for going through all of this. And keep the hope! I was diagnosed with craniosynostosis of the saggital seam at 3mo. old. It's been 25 years and I can't say it affects my daily life for one second other than the reminder that I am so lucky for the advances in surgery that were being made back then. Charlie is already so inspirational, I can only imagine how great he's going to be when he grows up!

My son was diagnosed with cranial synostosis at birth. He is now seven weeks old. I have been preparing myself for the impending surgery which will take place sometime in August. Charlie's story gives me hope and faith that I sorely needed. Thank you! Love and prayers.

I find Charlie's story amazing and truly inspitational. Our baby has been diagnosed with mild hydropcephalus. His ventricles are 11+12, but they see a prior brain bleed. He also has some thinning of the cortex. So unless it reverses I think we may face cerebal palsey too. He moves constantly though and responds to sound. I am encouraged at that. Thanks for your story!

Hi Charlie, Matthew and Family, My name is Jenna and I came across your site. You are both precious and special little boys. You will be in my thoughts and prayers. caringbridge.org/visit/champ291