Little Charlie Rocks
and Little Matthew Rolls
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Charlie's Friends
Meet Madison Faith.  Madison was born 6 weeks premature and suffers from severe hydrocephalus and macropephaly cranial synostosis.  To get to know Madison and hear more about this amazing little girl simply go to www.littlemadisonrocks.com.  You won't be disappointed, her story is incredible, just like she is....


Photo courtesy of Karl Voss Photography

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This is Matthew, despite appearances, he is the younger of the twins.  Matthew suffers from severe developmental and emotional delays.  He is currently being evaluated for autism.  For more of Matthew's story or for more information about autism or pervasive development disorders, go to www.littlematthewrolls.com.



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Nate has congenital hydrocephalus - treated with a shunt; asymmetrical ventriculomegaly; intraventricular and intraparenchymal bleed on left and right; large left porencephalic cyst; aqueduct stenosis; rt hemaplegia; truncal hypotonia; large left chronic subdural hematoma - treated with a shunt; incomplete right hemianopsia; epilepsy; and strabismus.  All this and he is an amazing little boy.  To learn more about Nate or for information of his diagnosis, go to http://www.caringbridge.org/cb/viewHome.do.

                        

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     Meet Max, we met Max though CAPPS.  
    You can read his entire story about his 
    cranial syntosis from diagnosis through 
    surgery at: 
    cappskids.org/CAPPSCraniokidMax.htm
.









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    This is Austin and his sister, 
    Madi.  His story of metopic 
    cranial synostosis is amazing.  
    He has had several surgeries 
    to correct it.  His mother has 
    even put CT scans as well as x-
    rays, which you don't get to 
    see often.  If you would like to 
    read Austin's story, go to http://cappskids.org/CAPPSCraniokidAustin.htm





















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Jaden was born with a cleft plate, also he had abnormally small fontanel and dysmorphic ears, but this was only the beginning of their journey.  His mother has done a great job with his web site.  If you would like to read more about Jaden, visit his web site at http://www.caringbridge.org/cb/viewHome.do


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